For a number of years we have been happy and proud to be a supporter of the FSHD Global Research Foundation. Established in 2007 by Bill Moss AO, a well-known Australian businessman and philanthropist who has FSHD, the foundation have been addressing the chronic lack of medical funding and awareness of FSHD, both in Australia and globally. Over the past 9 years, the Foundation has committed $8.3 million to fund 40 ongoing medical research grants in 9 countries; the USA, Canada, the Netherlands, Italy, France, Belgium, Spain New Zealand and Australia.

At SCP we support in any event that we can, whether it be sponsoring events, donating prizes or simply by attending many events they organise to raise funds for the much needed research required to try and combat FSHD around the globe.

If you would like to find out more about how you can support The FSHD Global Research Foundation visit their website: